First symptom of als reddit. Her first symptom was a notable "lisp".
First symptom of als reddit This is all based off the assumption that you are already noticing symptoms of ALS. I’m sure the clinic will get a swallow test done but ask about it. Some combinations of clinical symptoms scream als and have very few other possibilities. If it’s not at the time the twitching starts, it should be within a few days, maybe weeks. We buried him father's day weekend June 2012. My dad had ALS so I was much more "in tune" to the symptoms than most. At 60 they will be even worse, and at 90 you would be having some real problems that would be alarming. At 8+ years I have full use of my appendages. Mar 15, 2023 · My husband’s first symptoms were in early 2000. I still have some swallowing issues with thin liquids like water but with safe swallowing techniques I’m getting by okay. ) twitching was my first symptom. Google" (I know, stupid), but my symptoms go beyond just muscle-twitching or cramps and honestlysort of checks off a lot of the items for ALS. The problem is I spent to much time reading cases of ALS patients and how it started that, even if it is a minority, I found people saying that they add like 2 or 3 clean EMG followed by a dirty one. It took 2 more years for the VA to verify and provide a second diagnosis. I was awakened in the middle of the night by hard muscle twitching in my right bicep. It is progressive and is relentless. If you have numbness, tingling, or pain as your primary symptoms, you're fine. Mar 21, 2023 · The first signs of amyotrophic lateral sclerosis (ALS) are often muscle weakness and twitches leading to trips, stumbles, and other seemingly clumsy behaviors. Lately, I've over-consulted "Dr. Then she started slurring her “r” and “L” now her voice is completely compromised and her swallow is abnormal. I originally thought that I had pulled a muscle salsa dancing. Early signs include clumsiness, dropping things, and tripping or stumbling due to weakness in the arms and legs. Other then some weakness in arms and a weaker neck she is perfectly okay but claims she is "progressing quickly". As eating becomes more difficult, encourage him to have a feeding tube put in. My right hand has trouble with fine movements and grasping things but Online all it says is “everybody is different. People with als can have pain, but most of it is later stages where the muscles are wasted and making your joints hurt. Yes, my moms first symptom was not having a clear voice. Over the course of that night, I noted similar twitching in my left arm. Took 6 months to see a neurologist because we were looking for other things that first trip was inconclusive, kept looking for other things for another year circled back to neurologist and then into hospital for every test, that last trip to neuro to diagnosis was 7days. Doctors, at that time, thought it was his spine (spinal stenosis) that eventually resulted in three surgeries, that did not help. I went through ivig for a while. The muscles in my right arm were first and it drove me crazy! Feb 12, 2015 · My first symptoms were exactly one week ago. My brother’s has bulbar onset also. Symptoms slowly progressed until 2019 when I was diagnosed with ALS. The right bicep twitching continued intermittently for the next day or so, followed by constant "popcorn"-like twitching in both my feet. Anyways, wrote a brief timeline of happenings, as my journal that I'm keeping is like 5 pages long. Hello, my mother is 40 and is experiencing some Symptoms that have me thinking it might be ALS. I’m sorry to hear about your brother. Has she had any treatment. The first thing the doctors did was ask him to stick out his tongue. Bulbar ALS has such obvious signs in retrospect, at the time he didn't stare at his tongue in the mirror and we didn't ever notice. CTS causes many of the same symptoms as ALS, but notably will cause a difference in feeling where ALS doesn't. When I would lift my leg up straight in front of me my thigh would start to cramp after a few seconds. Apr 12, 2024 · In June 2023, I visited a neurologist as I was experiencing a tingling/buzzing sensation in my hands and feet. Other “Symptoms”—Twitching If you have muscle twitching and the internet says that is a symptom of ALS, pay attention. This is very well documented. After a few weeks, my symptoms went away. My first symptoms were muscle cramping in my leg. It lasted for about 3 days and then stopped. Fewer people have difficulty with speech or breathing as early signs of ALS. I read people having pain or cramp as a first symptom. Only the remaining 5% start with twitching first, but the weakness will start very quickly most all the time. CIDP can usually be successfully treated with ivig. Twitching (fasciculations) is sometimes a symptom of ongoing ALS. I’ve had symptoms 3 years and still am just a suspected als diagnosis. His tongue was the biggest symptom he hid. I’m on all 3 meds. Hi, I’m 19M and was diagnosed with ALS recently. He developed weakness in his left leg. ALS specialist told me that you would know it was ALS within a couple of months regardless of any sensations of weakness or whatever. Very long process getting diagnosed but finally in May 2022 I had an emg and it was confirmed. Motor neurons reach from the brain to the spinal cord and from the spinal cord to the muscles throughout the body. I started showing symptoms in October 2018 and was diagnosed in January 2019. But it’s not, typically it is just something called Benign Fasciculation Syndrome (BFS) and while annoying, it’s totally harmless. Then left foot drop after a stress attack and then the weakness kind of spread around with no order. Now you might have learned that the twitches are called fasciculations and the web tells you it’s a symptom of something bad. Many people with ALS notice the first signs of the disease in the hand or arm as they find it difficult to perform simple tasks such as turning a key in a lock, buttoning a shirt, combing their hair or writing. She then started getting small twitches or pulses through her body. Hi ! I am 27 years old and for several months I have had quite heavy symptoms which have worried me a lot. Her first symptom was a notable "lisp". Any neuromuscular doctor can confirm this. Looking back 18months from symptom to diagnosis, started with foot drop. She can still use her hands to lift stuff and pour coffee and all that. It’s been diagnosed as sciatica and I’m set up to do an MRI next week but if don’t have any lower back pain, not really even in groin or hip or ALS can start with fasciculations or cramps as the first noticed symptom. The first official identification of my symptoms was in Jul 2015 when they did my first NCV/EMG. A couple weeks ago my mom was diagnosed with als after first noticing symptoms 6 months ago. He was finally diagnosed with ALS a few days before he died from it. To say that someone who developed fasciculations and cramps and a year or two later get an ALS diagnosis, have had BFS in the first place is nonsense. My symptoms started in my right shoulder. is tingling and numbness a symptom of ALS in the early stages? I have had some pain, tingling and numbness along with a pine and needles feeling in my left leg/foot for about a month and a half. MRI head came back clear and I was diagnosed with Functional Neurological Disorder (FND) by the neurologist. Even people having twitching as a first symptom. First: Tongue. Feb 22, 2023 · ALS is a disease that makes your muscles weaken over time, including your arms and legs and the muscles you use to eat and breathe. . It is seldom, if ever, a first symptom of ALS (especially if it is all over your body). His initial symptom was a gradually weaken voice, followed by dysphasia (difficulty swallowing). I also experienced some random muscle twitches all over my body. ALS patients have good and bad days so some days she will feel stronger and sound “more clear”. The earliest signs of neuromuscular disorder ankylosing spondylitis (ALS) usually include muscle weakness or stiffness (spasticity). I’m slow progressing and can still talk, although it’s unclear at times. I have no umn symptoms. He died around loved ones in his home, under hospice care. Hi everyone, my name is Jason and I have ALS. Aug 3, 2013 · The major initial symptoms of ALS are clinical weakness, inability to perform certain functions (failure), atrophy detected by a physician, and upper motor signs detected on clinical exam by a neurologist. Father (56) began having stiffness in his neck and showing signs of dementia first; was diagnosed November 2011. 001% of people, primarily older ALS is a degenerative disease which means that over the course of, say, 30 days your symptoms will progressively get worse. Most people say they notice foot drop or troubles with nail clippers or buttons as first symptoms. My first symptom was chest tightness and struggle to breath, then core and abdominal muscle weakness, coupled with constipation and no urge to urinate. I lost the use of my right arm by March, my left arm by May, and I started experiencing head drop by July. Individuals may also find they have My first symptom was slurred speech back in June 2021. She first started getting twitches behind her shoulder which you could visibly see. 95% of ALS cases start with unexplained relatively sudden weakness first. Twitching comes next. Progressive weakness with significant muscle wasting (it started in one hand) cramp-like pain and fasciculations all over (tongue also and slight slurred speech) the body. CTS affects 5-10% of people, with a primary onset in young or middle adulthood (many of us on Reddit); ALS affects about 0. By May 2012 he had lost his ability to speak and walk, and had to eat soft foods. He passed away at 53 in 2017. With suspected als I can get treated for als. Muscle cramps could also be pain inducing for people with ALS, but cramps could be literally anything, especially not something that is as rare as ALS( and even more rare depending on if you’re on the younger side). All that really matters is the treatment not the name. ” 2. After awhile that turned to twitching. Amyotrophic lateral sclerosis (ALS) is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. 3 other neuromuscular neurologists confirmed ALS even with an only slightly abnormal emg (second emg showed widespread fasciculations, but no real nerve damage including in the bulbar region where it started). tpiigc cljctt pvr qxmzl wglmz oxhs pywx pwct pubt icftgw